Deb Discenza speaks about her NICU experience with her daughter and finding out her daughter was receiving a bovine-based fortifier in the NICU. She discusses how her NICU experience led her to start Preemie Magazine and Preemie World. 

NICU Now Audio Support Series

NICU Now Episode 21: Advocating for NICU Babies and Families

Having a baby is life-changing. Having a baby in the Neonatal Intensive Care Unit (NICU) is life-altering. But as a parent, you do not have to do it alone. Whether your baby is premature, has special needs, or you are grieving a loss, Hand to Hold provides whole-family support to get you through this challenging time. Hand to Hold’s NICU Now Audio Support Series is a support-based podcast aimed to eliminate the many physical and emotional barriers NICU parents face in accessing and receiving support, allowing them to listen as they commute to and from the hospital as well as at their baby’s bedside. NICU Now is unlike any other podcast because it tackles tough subjects with compassion and experience, including guilt, grief and information to help parents care for their premature babies. Hand to Hold wants to ensure that every NICU and bereaved parent who needs support can simply plug in their earbuds and push play. Episodes will eventually be available in Spanish.

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NICU Now Audio Support Series