Miscellaneous
Around the globe, one of the biggest challenges rare disease patients face is getting a timely and accurate diagnosis of their condition. A new report by the Economist Intelligence Unit – the research and analysis division of the Economist Group and the world leader in business intelligence – takes a look at the challenges facing patients living with rare diseases across five Asia Pacific economies. Titled “Suffering in Silence,” the findings of the report have been published in a 9,000-word white paper that explores health care professionals’ understanding and management of rare diseases in Australia, China, Japan, South Korea and Taiwan. On a new episode of the World of Promise podcast, host Anthony Farina sits down with the report’s Editor, Jesse Quigley Jones. Jones talks about what surprised him in the findings and what he believes health care providers, government and industry can learn from the report.