Sweet Valentina | Cindy Younan | 17
Cindy Younan, founder of cvijourney.com and mother to Valentina (1.5 years), describes the day during her pregnancy when she found out about her daugh...
Kaleidoscope: The Cortical Visual Impairment Podcast
Share:
Listens: 15
About
Cortical visual impairment (CVI) is the leading cause of pediatric visual impairment in the developed world. The eyes can see, but the brain can't interpret the visual world. Due to neuroplasticity, the functional vision of a child with CVI can improve. The number of children with CVI is growing, so why isn't anyone talking about this public health crisis? We are. Music by Storm Crews. Art by Ian Kleinfeld.
Hindsight and Insight | Kira Brady | 16
Kira Brady tells the journey to her son’s diagnoses, which include cerebral palsy (CP), periventricular leukomalacia (PVL) and cortical visual impairm...
The PhD and the IEP | Barbara Lopez Avila | 15
Barbara Lopez Avila has a PhD in developmental psychology. But she says she still feels ill-prepared to help her son Logan navigate life with cortica...
Grace Unfiltered | 14
Grace (8) is a vibrant second grader with lots to say. She describes what it’s like to live with cortical visual impairment – the things that upset he...
Team Archer! | Cheyanne Marcy | 13
Cheyanne Marcy has been an advocate on big stages, on everyday social media platforms and in day-to-day life on behalf of her son, Archer (5). She val...
This Mom With a Blog | Mia Carella | 12
Mia Carella of thismomwithablog.com shares wisdom from the head and the heart, which comes from navigating life as a CVI mom / heart mom. (Her daughte...
Word Bubble Much? | Tommy Szalapski | 11
Tommy Szalapski – Google accessibility engineer and CVI dad – has created a new app for CVI literacy. The Roman Word Bubbling project automates the te...
Rosalie, Small but Mighty| Stephanie Kung | 10
Rosalie (1.5) has hydrocephalus, a build-up of fluid in the cavities deep within the brain, which comes with the risk of vision problems. She received...
Emma’s Renaissance | Lynn Elko | 9
When Emma (16) received a cortical visual impairment diagnosis at age four, CVI literature was not widely available. The consensus was “this is just w...
Helping River Read | Judy Endicott | 8
Judy Endicott works with her grandson River (9) on his reading skills, relying on her background as a special educator and continuing education in CVI...