Communicating the Value of Clinical Trials to Underserved Minority Communities

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WCG Institute Podcast: Pioneers of Clinical Research

Science


In this episode, we learn about CISCRP’s AWARE for All campaign, which builds awareness of, creates access to and encourages participation in clinical trials. Ellen Getz, associate director of development and community engagement at CISCRP, The Center for Information and Study on Clinical Research Participation, discusses AWARE for All.CISCRP's flagship grassroots campaign works within urban, low-income communities of color to raise awareness of the value of participation in clinical trials and to increase public trust in the clinical research enterprise. The campaign raises awareness of the value of participation in clinical trials and to increase public trust in the clinical research enterprise.  This is a response to health disparities in these communities—disparities rooted in the long-standing lack of access to healthcare, and gaps in understanding between these communities and the healthcare system. Each AWARE for All event brings together a diverse array of stakeholders, including community groups, local researchers, patient advocates and community members. “Hearing from local study volunteers and local researchers is one of the most uplifting parts of this program, especially if [participants] can hear about breakthroughs or really exciting developments and advancements in research that are taking place in their own community,” she reports.  Weeks of planning with community leaders culminates in a free community health event. Although usually done onsite and in person, the next event, on July 16, will be virtual. This will allow people to watch it live or access the information later. In addition to presentations, it will include a virtual health screening. Details are available here: awareforall.org.