Being diagnosed and living with multiple sclerosis is often overwhelming. Your MS journey might be challenging, frustrating and depressing at times. On the bright side, superb MS care is available. This podcast lays out ways that you can take charge of MS and get the care you deserve. Topics include finding the right neurologist for you and how to get reliable MS information. Improve your communication with your doctor regarding worsening symptoms, progressive disease, MRI imaging and medication risks. Making shared decisions regarding treatment with your neurologist highlighted. If you feel more comfortable sticking with the treatment plan called "adherence," you will be better off in keeping your MS in check. Financial assistance for treatments, MRI and office visits outlined. Expert information reviewed on diet, vitamin D, smoking, alcohol and exercise. Barry Singer MD, Director of The MS Center for Innovations in Care, interviews: Cathy Chester was diagnosed with multiple sclerosis in 1986 and has become a leading national MS patient advocate. Cathy is a graduate of Boston College with a Bachelor of Arts in English and Business and The Alfus Patient Advocate Certificate Program at The University of Miami. Cathy’s An Empowered Spirit was named Top Health Blog by Healthline and Top Multiple Sclerosis Blog by Healthline and WEGO Health for several years. Cathy is a regular contributor to MultipleSclerosis.net and Multiple Sclerosis News Today. Bhupendra Khatri MD is the founding medical director of the Regional MS Center of the Center for Neurological Disorders in Milwaukee, one of the largest multiple sclerosis centers in the U.S. Dr. Khatri completed his residency in neurology at the Medical College of Wisconsin and fellowship at University of California in San Francisco. He has been a principal investigator in numerous clinical trials, as well as an invited speaker at both national and international conferences. He has published over 55 papers in peer-reviewed journals and has contributed chapters to six books. In 2015 he was honored with the National Multiple Sclerosis Society Lifetime Achievement Award. He is an accomplished book author and published the award-winning bestselling book, “Healing the Soul, Unexpected Stories of Courage, Hope and the Power of Mind.” Visit mslivingwell.org for more information Share your MS story on ICanWithMS.org

MS Living Well: Key Info from Multiple Sclerosis Experts

Taking Charge of Multiple Sclerosis

Struggling with MS fatigue? You aren't alone. Approximately 90% of people living with multiple sclerosis deal with fatigue. An overwhelming sense of tiredness can be disruptive at work and take away from your family time and social life. This podcast dives into the different causes of MS fatigue, including disease impact on nervous system, medications and poor sleep. Approaches to improve both mental and motor fatigue are highlighted including energy conservation strategies, exercise and workplace changes. Fixing sleep issues can substantially help fatigue. Treatment options reviewed for causes of poor sleep such as anxiety, restless legs, leg cramps, need to urinate overnight and sleep apnea. Medication options for MS fatigue are reviewed including, amantadine, modafinil, armodafinil and amphetamines. Barry Singer MD, Director of The MS Center for Innovations in Care, interviews: Randy, from Must Stop MS!, was diagnosed with multiple sclerosis in November 2012. Initially he was worried about his future: wheelchair? providing for his family? Knowing how he felt after the diagnosis led him to become an advocate for this disease. He started Must Stop MS! on Facebook to provide support, new information regarding MS, and to raise awareness of the disease. Must Stop MS! quickly spread to Twitter and Instagram. He started a weekly Twitter chat named #ChatMS that occurs every Monday at 7pm EST. His mission is to bring the MS community together to help raise awareness, support each other, and provide hope. Randy won't stop until "we get that cure we all need." Enrique Alvarez MD PhD is an Assistant Professor of Neurology at the University of Colorado School of Medicine and cares for patients multiple sclerosis patients at the Rocky Mountain MS Center. He was a graduate of the Medical Scientist Training program at the University of Colorado Denver and completed his neurology residency and neuroimmunology fellowship at Washington University in St. Louis. He has a special interest in using biomarkers to customize treatments and patient care. Visit MSLivingWell.org for more information. Share your MS story on ICanWithMS.org

Overcoming Multiple Sclerosis Fatigue

Warning: ADULT CONTENT for 18 Years of age or older.  Sexual health is an important part of quality of life for many people. Multiple sclerosis can cause new challenges and disrupt sexual relationships. Positioning options, including pillows and slings, are reviewed that can help overcome weakness and stiffness of legs. Factors that can reduce a woman's libido, or sexual drive, are addressed such as medications and hormone levels. Ways to achieve a satisfying sexual relationship with disability from multiple sclerosis are discussed in terms of intimacy and foreplay. Detailed solutions are presented such as stimulation and lubrication to overcome decreased or painful sensations with intercourse. Up to 40% of men with multiple sclerosis can have low testosterone which can decrease libido. An array of testosterone replacement options highlighted depending on whether a man still wants to father children or not. Erectile dysfunction treatments discussed in depth including oral pills, intra-urethral suppositories, self-injection therapies, vacuum erection devices and penile implants. Barry Singer MD, Director of The MS Center for Innovations in Care, interviews: Heather Raznick MSW, LCSW is a psychotherapist in clinical practice in St. Louis. She obtained a Masters in Social Work from Washington University. She trained at the world-renowned Masters and Johnson Institute, where she studied clinical sex therapy under the direct supervision of legendary sexologist Dr. William Masters. She provides academic and clinical training to residents and medical students as well as lectures at several area hospitals. She is a member and has received certifications in multiple organizations including American Association of Sex Educators, Counselors and Therapists and the International Society for the Study of Women’s Sexual Health. Etai Goldenberg MD is the Director of Men’s Health at Urology of St. Louis. Dr. Goldenberg completed his undergraduate degree at University of Michigan and medical school at Wayne State University School of Medicine in Detroit. His urological surgery residency was obtained at Washington University in St. Louis. In addition, he completed a fellowship in male reproduction and sexual health at the Smith Institute for Urology in New York City. He specializes in male sexual health, male reproduction, microsurgery, prosthetic urology and testosterone replacement. Visit MSLivingWell.org for more information. Share your MS story on ICanWithMS.org

Sex & Multiple Sclerosis

Trouble with your bladder? Most people with multiple sclerosis have bladder issues. Penelope shares her personal bladder challenges with urgency, trouble emptying her bladder and use of catheters. Rather than being embarrassed, Penelope gives advice on when to speak up to get needed medical care and how to cope (laughter helps). Dr. Travis Bullock explains what happens to the bladder in MS, treatment strategies for bladder urgency reviewed including pelvic exercises, medications and Botox injections. Options for trouble emptying bladder highlighted including self-catherization and suprapubic catheters. Ways to reduce frequent urinary tract infections (UTIs) discussed including methenamine, d-mannose and cranberry tablets. Barry Singer MD, Director of The MS Center for Innovations in Care interviews: Penelope is the author and founder of Positive Living with MS where she uses humor and her own life experiences with MS to help others navigate this unpredictable journey. Travis Bullock MD is a urologist with expertise in multiple sclerosis at Urology of St. Louis.  He completed his urologic surgery residency at Washington University School of Medicine in St. Louis and fellowship in Female Urology, Neuro-urology and Pelvic Floor Reconstruction at the Center for Continence Care and Female Urology at Metropolitan Urologic Specialists in Minneapolis, Minnesota. Visit mslivingwell.org for more information. Share your MS story on ICanWithMS.org

Bladder Strategies for Multiple Sclerosis

This podcast explores cognitive issues in multiple sclerosis. Caroline aka The Girl With MS shares the impact of MS on her short-term memory, word-finding ability and multitasking skills. She talks about the role of stress, sleep and mood have on her cognition. Caroline reviews how she copes with these changes partially through diet, exercise and good sleep. Abbey Hughes PhD, a rehabilitation psychologist from John Hopkins, outlines ways to deal with memory and multitasking obstacles for those living with MS. Strategies to help cognitive functioning are shared including task completion tips, journal use, brain-empowering apps, speech therapy, stress reduction and depression control. Screening tools to check for cognitive problems such as brain processing speed reviewed. MS brain changes and key ways to maintain brain health and better cognition emphasized. Barry Singer MD, Director of The MS Center for Innovations in Care interviews: Caroline aka The Girl with MS is a certified life coach, writer and motivation speaker. Her writing focuses on articles in health journalism and highly rated blog. Her blog post topics range from personal experiences, research-based articles, recipes, life hacks and resources. Abbey Hughes PhD is a clinical psychologist with expertise in rehabilitation psychology and multiple sclerosis rehabilitation. She is an Assistant Professor of Physical Medicine and Rehabilitation at John Hopkins. Her clinical and research interests include the assessment, treatment and management of psychological and cognitive difficulties associated with multiple sclerosis including adjustment to disability, sleep disturbance, fatigue, depression, anxiety, and problems with thinking or memory. Visit mslivingwell.org for more information. Share your MS story on ICanWithMS.org

Cognition and Multiple Sclerosis

Since the outbreak of the coronavirus, telemedicine has rapidly become the new standard for patients to communicate with their neurologists. Video conferences on smartphones, tablets, and laptops have… for now at least… replaced almost all appointments that used to be done in person. Dr. Stephen Krieger from New York City and Dr. Annette Okai from Dallas discuss their early insights to advantages and disadvantages of the new virtual appointments for their patients with multiple sclerosis. Tips to navigate the technology and improve your virtual visit shared. These MS experts share their advice on whether you should have a virtual appointment now or wait for an in-office appointment. The neurologists also speculate on the future of telemedicine. Barry Singer MD, Director of The MS Center for Innovations in Care at Missouri Baptist Medical Center, interviews: Annette Okai, MD is a MS specialist and Medical Director of the Baylor Scott & White Multiple Sclerosis Treatment Center in Dallas, Texas. She completed her residency in Neurology in 2006 and fellowship in Neuroimmunology in 2008. Dr. Okai interests include studying multiple sclerosis in diverse populations and the utilization of conventional and novel MRI techniques in multiple sclerosis. Stephen Krieger, MD is a MS specialist at the Corrinne Goldsmith Dickinson Center for MS at Mount Sinai in New York. He is an Associate Professor of Neurology at the Icahn School of Medicine at Mount Sinai and Director of the Neurology Residency Training Program. He created a topographical model to better understand MS disease course that has been adopted globally. Visit mslivingwell.org for more information. Share your MS story on ICanWithMS.org

The Virtual Appointment: Telemedicine and Multiple Sclerosis

At the height of the COVID-19 pandemic, neurologists from multiple sclerosis centers from Barcelona, Spain and Rome, Italy share their experiences on the front lines. These MS specialists share how they are supporting and advising patients during this crisis.  Barry Singer MD, Director of The MS Center for Innovations in Care at Missouri Baptist Medical Center interviews: Giovanna Borriello, MD, MS Neurologist working at the MS Center in the academic Hospital Sant' Andrea in Rome, Italy since 2001. She has been an investigator over 40 clinical trials on multiple sclerosis including trials focused on new treatments. Jaume Sastre-Garriga MD, PhD is the Deputy director of Cemcat, The MS Center of Catalonia in Barcelona, Spain. He serves on the executive board of RIMS (Rehabilitation in Multiple Sclerosis) and the steering committee for MAGNIMS, the European networks for best practice and research in MS rehabilitation and MS MRI imaging, respectively. Visit mslivingwell.org for more information. Share your MS story on ICanWithMS.org

COVID-19 and Multiple Sclerosis

Multiple sclerosis experts share valuable information about pregnancy and multiple sclerosis. The podcast covers pregnancy planning for a healthy baby while minimizing risk of multiple sclerosis disease activity. Topics of unplanned pregnancies, birth control and role of high-risk obstetricians addressed. Infertility and the role of in vitro fertilization in woman with MS covered. Genetic risks to child and pros and cons of nursing addressed. Information for men who want to father children reviewed. Barry Singer MD, Director of The MS Center for Innovations in Care at Missouri Baptist Medical Center in St. Louis, interviews: Claire Riley, MD is the Director of the Multiple Sclerosis Center at Columbia University Irving Medical Center and an Assistant Professor of Neurology. Amy Perrin Ross, APN, MSN, CNRN, MSCN is a board certified neuroscience nurse and the Neuroscience Program Coordinator at Loyola University Medical Center. She is a former President of the International Organization of Multiple Sclerosis Nurses. Visit Visit MSLivingWell.org and ICanWithMS.org

Pregnancy and Multiple Sclerosis

Multiple sclerosis experts share advice on how to substantially improve your care when interacting with your neurologist. Key insights to develop trust and understanding with your doctor reviewed. Compelling info to help you advocate and communicate your goals and needs. Specific ways to make the most of your appointments addressed. Difficult questions are tackled such as progressive disease and long-term planning. Managing MS symptoms and wellness highlighted. Benefits of reviewing MRI images in the exam room outlined. Excellent tips on how to access free medication and MRI programs for people who are uninsured or have high out-of-pocket costs. Barry Singer MD, Director of The MS Center of Innovations in Care at Missouri Baptist Medical Center interviews: Flavia Nelson MD, Associate Professor of Neurology, Director Multiple Sclerosis Division at the University of Minnesota in Minneapolis. She completed her residency and multiple sclerosis fellowship at the University of Texas Health Science Center in Houston, Texas. Dr. Nelson has served as Chair of the Department of Defense Panel for Multiple Sclerosis Research Program, committee member on Consortium of MS Centers MRI Guidelines Committee and Chair of International Advisory Board on Brain Atrophy and MS (2016). Timothy West MD, MS Neurologist, Rocky Mountain Multiple Sclerosis Clinic in Salt Lake City, Utah. Dr. West completed medical school at the University of California-San Francisco (UCSF) and fulfilled his residency in neurology at UCSF. He has had extensive experience and research in the area of MS, including at the Cleveland Clinic Lou Ruvo Center for Brain Health in Nevada, the Sansum Clinic in California, and the UCSF MS Center in California. Visit: mslivingwell.org & ICanWithMS.org

Inside Angle: Partnering with your Neurologist

Multiple sclerosis often causes nerve pain with burning and pins-needles sensations, and spasticity associated with muscle tightness and cramping. The specific role of medical marijuana components including THC and CBD in MS in alleviating these MS symptoms addressed. Information regarding which MS patients are more likely to benefit from cannabis are reviewed in depth. Risks and concerns of cannabis use in MS addressed. All federal, state and local laws should always be followed. Barry Singer, MD, Director of The MS Center for Innovations in Care, interviews: Allen Bowling, M.D., Ph.D. , MS neurologist at the Colorado Neurological Institute Jacob Sosnoff, Ph.D., Associate Professor in Department of Kinesiology and Community Health, University of Illinois at Urbana-Champaign  To learn more, mslivingwell.org. To share your story, check out ICanWithMS.org.

Cannabis & Multiple Sclerosis

Country living far from large cities has wonderful advantages, but can present some unique challenges to receive optimal multiple sclerosis care. This podcast addresses when it’s time to drive to see a MS specialist. MS experts share their wisdom on various strategies to access the most current treatments while still enjoying life in countryside from the plains to the mountains. Creative ways of coordinating care between local heathcare providers and MS specialists in MS centers described. Emerging telemedicine options reviewed to get remote care. Barry Singer, MD, Director of The MS Center for Innovations in Care, interviews: Susan Scarberry, MD, Sanford Medical Center, Fargo, North Dakota. Clinical Associate Professor of Medicine at the University of North Dakota School of Medicine and Health Sciences. Gabriel Pardo, MD, Director, OMRF Multiple Sclerosis Center of Excellence, Oklahoma City. See also: www.mslivingwell.org and www.ICanWithMS.org.

Country Living with Multiple Sclerosis: Improving Rural Care

Myelin is the coating on the nerve cells (neurons) of the nervous system that allows messages to travel rapidly in our body. Myelin wrapped around the neurons also keeps neurons healthy. In multiple sclerosis, the immune system attacks myelin disrupting electrical signals and making neurons vulnerable to chronic damage. Remyelination is the strategy to recoat the nerves with new myelin. Myelin-making cells called oligodendrocytes (“oligos”) are described. The podcast reviews recent laboratory breakthroughs in screening for new treatments to turn on immature oligos to repair myelin. The exciting initial steps are presented regarding the transition from the laboratory research into clinical trials with multiple sclerosis patients. Barry Singer, MD, Director of The MS Center for Innovations in Care at Missouri Baptist Medical Center interviews: Ari J Green, MD, Chief of Division of Neuroinflammation and Glial Biology, Medical Director of Multiple Sclerosis and Neuroinflammation Center, Debbie and Andy Rachleff Distinguished Professor of Neurology, Departments of Neurology and Ophthalmology, University of California San Francisco. To learn more, www..mslivingwell.org To share your MS story, check out www.ICanWithMS.org 

Remyelination: Repairing Multiple Sclerosis

Treatment approaches to multiple sclerosis continue to change. Over the past quarter of a century, MS went from an untreatable disease to a disease responsive to a broad array of oral, intravenous and self-injected medications. Greater long-term disease control is now possible for more people living with MS. However, undertreatment can result in significant physical disability including imbalance, weakness, visual loss, incontinence and pain and significant cognitive impairment including short-term memory loss, multitasking impairment and word-finding problems. This podcast outlines different treatment strategies to maximize quality of life long-term to realize your individual goals with the least disability. Information is presented on which people with MS might be at increased risk of disability and need early use of a highly effective medication. Treatment safety is weighed against the treatment benefits and risk of long-term disability. Barry Singer MD, Director of The MS Center for Innovations in Care, interviews two amazing MS specialists who are also phenomenal patient advocates: Heidi Crayton MD, Director of The MS Center of Greater Washington in the Virginia suburbs of Washington, DC. Dr. Crayton completed her neurology residency and multiple sclerosis fellowship at Georgetown University Hospital. She is a national leader in MS treatment and clinical trial investigator. Aaron Boster, MD, is an MS expert at Ohio Health in Columbus, Ohio. Dr. Boster completed his neurology residency at the University of Michigan in Ann Arbor and a fellowship focused on clinical neuroimmunology and multiple sclerosis at Wayne State University in Detroit. Dr. Boster continues to be active in clinical research, authoring academic publications and lecturing globally. To learn more about multiple sclerosis, go to: www.mslivingwell.org To share your MS story, check out: www.ICanWithMS.org

Winning Strategies in Multiple Sclerosis Treatment: Don’t Underestimate the Disease

Barry Singer, MD, Director of The MS Center for Innovations in Care at Missouri Baptist Medical Center interviews expert guests about the latest treatments, innovations, and tips for patients living with multiple sclerosis.

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MS Living Well: Key Info from Multiple Sclerosis Experts

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