SMA Australia
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About
Spinal Muscular Atrophy (SMA) is a rare genetic muscle wasting disease that is the childhood version of motor neurone disease.If you are newly diagnosed, or have just come across our page for the first time, we urge you to get involved, within the SMA community here in Australia. We would love to hear from you and are happy to support you on your journey. We acknowledge that each person is different, and we endeavour to assist you and your requirements.
What About Me? Accessing Treatments for Adults
We know the non-recommendation of both Nusinursen (Spinraza) and Evrysdi (Risdiplam) for the adult community has left many feeling deflated. We want t...
Newborn Screening Advocacy Next Steps (Webinar)
Now that Newborn Screening (NBS) has been recommended, we turn our focus to the Australian states and territories, as this is where NBS gains funding....
Why do I need to see an adult Neurologist
Why do I need to see an adult Neurologist with Lauren Sanders
The Importance of a patient registry and why to participate
The Importance of a patient registry and why to participateGuest: Robin ForbesVisit http://smaaustralia.org.au for more information
Getting involved in sports with a disability
In this episode, we speak to Australian Paralympian Champion, Daniel Michel about getting involved in sports with a disability.